unico_love: (childlike empress)
I'm feeling depressed about my life. I've accomplished so little in the past year other than stay alive. I've had symptom after symptom pop up. Abnormal test result followed by abnormal test result with no "real" answer. Nothing that connects the dots. When I get my dizzy spells, Michael worries what they mean. My brother and mother were hoping for a tumor in the pituitary gland. Hoping for a tumor... How low do you have to sink for that? My mentality is way off. I like the internet, but don't get enjoyment the way I used to out of in-person socializing. I don't feel like sending emails, though, either. I have nothing to say. I do nothing that would interest other people. My main enjoyment comes from helping other people and giving to other people. Hence, Project Snow makes me happy. Helping a loved one less fortunate who could benefit not only financially from me, but from my knowledge of things like make up and clothing, etc.

I'm reading a book right now and it says how everything is conscious. You can incarnate as literally anything and reincarnate as anything. It's like, I've thought this since I was 11 years old. I've prayed for the souls of living and non-living things for many, many years. People need a book on it? I get people have different beliefs, but this stuff is so ingrained in my heart. I'm feeling less desire to be partnered (who knows? Maybe that's just my lack of libido). I wouldn't mind becoming a nun, but I do not agree with the Catholic church. Maybe Buddhist? I am ready to take a vow of poverty and a vow of celibacy. I no longer feel fit for this world. At times that scares me and I think I'm going to die soon, having finished with this life. I feel like I've already lived through so much and learned so much from everything.

This sickness leaves me feeling haunted. My body is disjointed, not interacting properly with the environment. It is not running well. Neither is my mind, personality, or spirit. I am full of love for everyone. That is the one thing intact. I am bursting with love. I feel quite strange.
unico_love: (Default)
I feel really fuzzy right now, like I had a seizure or might have a seizure, so bear with me. But I've felt like this for awhile, so it could be a false alarm. But the neurologist doesn't think I'm aware of a lot of my seizures, so who knows? I'm confusing myself. New topic.

We went to Oakbrook Mall. Michael was irritable some of the time, but I'm glad we went! I didn't realize they had some great stores there I would actually use! Maybe it's because I've grown up a bit and some of my tastes have changed? I try to use more environmentally sound products, cruetly-free, if at all possible. Some of the clothes I like are more mature. I spend more on products and am consciously trying to buy less plastic crap.

Anyways, I have been planning on buying Izzy and myself Bare Escentuals lipstick (two a piece) online -- but there was a boutique there! Unfortunately, it didn't have all the lipstick colors. And apparently they are changing the lipstick shades April 11th. I have to wait until April 3-4th to afford the lipstick. But I decided I want to buy the "old" lipstick because then it will gone for good, and we'd have plenty of time to buy the "new" lipstick if we wanted to. A color Izzy was interested in, but was sold out online, was in the boutique -- Berry Glace, so even though Izzy hadn't made her second decision (she had decided on her first -- Italian Ice) I bought it for her. On our way back out of the mall, Michael bought me a Bare Escentuals lipstick in Parfait. It's a little peachier than the color I was considering (Gelato - more straight nude pink, though Parfait is also a nude on me).

We went to Sephora and it was a full one, with the Jasmine line. I looked at the Urban Decay things. It was a bit squashed by the beauty chairs area, though, so I couldn't tell if they had palettes besides the Naked ones. I want to buy Michael's sister an Urban Decay palette for Christmas if I can afford it -- the Vice palette if it returns. I have it set to tell me by email if it returns online. I liked looking at all the different skin products and make up... But I'm broke, so I didn't buy anything.

There was a Soma there, and I love their underwear! It's so pretty and comfortable. I should buy my mother some from there sometime. I bought mine online and had to pay a lot in shipping. Now I know there is a brick and mortar store nearby.

There was a Disney store! All the Disney Stores seem to be closing...

There was an H&M! We don't have one at the mall we usually go to, but I love this store, and they don't sell online. I bought my mother her Mother's Day gift her -- a blue sweater for $10. They always have great pricee, plus now they are selling spring/summer clothes.

I tried to send something to the Glen Ellyn Post Office by Newton Park and they gave me trouble, like they always do. It left me very agitated. I hate that post office and do not intend to use it for packages again. Today Michael mailed my package from the downtown Glen Ellyn Post Office without any problems. I've got a big package I'm putting together for Poland to send out mid-April and will probably use that post office. Michael had a good experience.

I'm still having anxiety and taking 2mg Klonopin everyday, but I'm trying to feel less guilty about that, because my endocrine conditions can cause severe depression and severe anxiety (as well as irritability and hostility). I figure once I'm treated I will start feeling better and not be so med-reliant. I have been obsessed with Cushing's Disease today. I'm pretty sure I have an early/mild case of it starting to progress pretty fast. My weight gain hasn't been in the usual places for me (thighs, for instance), but my belly, in a pregnancy-type fashion. It has cellulite over it. I can't fit into any pants -- including new ones I bought for weight gain -- so I'm going to just wear sweatpants, pajama pants, and elastic waist skirts for the time being. Everyone assures me when I'm treated my body will go back to normal.

My breasts are getting big, too, but that doesn't bother me as much:P I'm wearing one of my new (ebay) bras today, too and yet I'm now getting quadboob from this too(28DD, could use a 28E -- for some other companies I would need a 28F). Hahaha, yes, laugh those who knew me as a college freshman! 4'11" and an A-cup! Well, not really -- just wearing the wrong bra size, as most do (more like a 28C). Anyways, I am not fat, I do not think any of you reading this are fat -- it's just my fat deposits are going to my waist and boobs only because my body thinks it's having a baby very soon and needs to be lactating. I read yesterday, though, that people like myself wtih very high prolactin levels often *don't* lactate -- it's the low-highs that do. Which doesn't make sense to me, but whatever.

I might start getting the Cushings stretch marks soon, which I dread. You can always lose weight -- stretch marks are another issue all together. And my face may become rounder (that's another weird thing -- usually my face gets rounder as I gain weight -- my face is not the slightest bit rounder/chubbier from when I was 25lbs lighter; I'm 5'1", so that's saying a lot). I've been playing with make up a lot and taking lots of face pictures and posting my favorites to Facebook. It sounds vain, but that's one of the few areas of my body that still feels "normal." And that I still feel I can make pretty. It reassures me that this weight gain is not normal because, if it were, my face would look chubbier.

I'm very anxious about the fact it takes many tests to diagnose Cushing's, and then more tests to figure out where the tumor causing it is located (and then you usually do surgery and you have to find a good surgeon... Luckily I live in the Chicago area, so I'm sure there would be an appropriate surgeon not too far). Usually Cushings is caused by a pituitary tumor. I *also* most likely have *another* pituitary tumor -- a prolactinoma releasing way too much prolactin (hence the boobs and the belly and the associated emotional pseudo-pregnant bullshit). That would be treated with strong meds to shrink the tumor and lower my prolactin levels. Two tumors. Two conditions. Two treatments. Two hormones (Cushings is too much cortisol being released from the tumor). A lot of overlapping symptoms -- including osteoporosis -- I want a bone scan asap, because my joints and back and hips hurt a lot the past few months. I will call the endocrinologist about that on Monday, and if she doesn't do anything, call my general practitioner (who works very close by) and ask for a bone scan. I also should go to her office and have my records transferred to her so she knows what's going on. Maybe I will even make an appointment with her. She works Mondays, Wednesdays, and Fridays. My endocrinologist is also part-time. My psychiatrist is the one who has my testosterone results, but I think my endocrinologist got them from him, and those were the most important ones. It's just having two possible conditions at once, with pituitary tumors involved, is overloading and confusing. Though I like that they could explain most of the problems I've gained over the past decade.

On a happier note, Michael went out with Dan and brought me back a large-ish vinyl figurine of Fluttershy from My Little Pony: Friendship is Magic. Though I do have too much random "junk" as it is@_@
unico_love: (Delight)
I received a call around noon that my cortisol from my suppression test was "borderline" so I have to do a 24 hour urine test, which I'm starting tomorrow morning. I'm a bit nervous about the idea of having Cushings after reading some bad cases of it and even a bunch of obituaries. One site called it "The Most Dangerous Disease You've Never Heard Of." Cushings has a tumor in the pituitary gland releasing tons of cortisol. I also have very high prolactin, which would likely be due to a tumor in the pituitary gland releasing tons of prolactin. That means I would need two tumors. I'm hoping that's not the case... I can't wait to get my MRI.

An interesting thing: My MRI at the hospital is set for April 6th. That's my maternal grandmother's birthday. She went into the hospital (in the 1970's) to die on my birthday, January 13th (same day of the week even -- Thursday).

I feel over the past month I have grown progressively weaker and sorer. My fatigue is worse. Just taking a shower or walking next door is hard. I'm slacking off on my chores, but I'm determined to clean the bathroom tomorrow. I'd also like to read and crochet... It sounds so simple, yet it's so hard.

I don't feel asocial at all -- I'd love to talk to people online, and friends in the area -- you can visit anytime! I hope Cory can visit this weekend. I feel bad about turning him down last weekend. I hope I can go to church this weekend, but the fatigue and acheing is worst in the mornings -- no matter what time I go to sleep.

It's ironic that when I was sick in the summer I feared I had a brain tumor and everyone told me I was being a hypochondriac and to stop looking things online, and then I gained more weight and people thought I was just being anorexic and wanting to lose weight, and it turns out I likely have a pituitary gland tumor that caused weight gain, as well as depression, anxiety, pain, and a bunch of other problems.

My family and Michael are very worried now, wondering if it's cancer or something. Because they see how I've changed and how things just don't make sense.
unico_love: (Delight)
Today was a better day than yesterday, at least. Michael missed his teaching at church and we both slept in. Cory was unable to come over, which was fine. Michael and I went to the free gem and mineral show at the Dupage Fairgrounds in Wheaton. Michael bought 3 carved stone animals -- a bear, a rabbit, and a cat. I bought a gorilla for Cory. I also bought an aventurine for myself, since they should bring good luck, and green moss agate earrings for Izzy. While I was flipping through the pendants on index cards, the first one I stopped at was labradorite -- the bracelet I'd been hoping to buy next month, probably as my last bracelet for awhile. Then I recently had been backing out of it, due to expenses as of late, but now I am more sure I should buy it if I can. Labradorite helps with intuition, seeing past illusions, and is associated with the brain (close to the pituitary gland -- where I'm having problems). Even if it doesn't help on a physical level, it's symbolic.

Then we went to the pet shop for cat food and we went to Aldi for human food. I skipped my shower tonight because my stomach is really bothering me. I keep trying to find information about hyperprolactanaemia, but most of the information is on Trying To Conceive messageboards. I want a board for people that is I Hope The Treatment Makes Me Infertile and Sterile. Also I want to get tested for Hashimoto's and mosaic Turner's Syndrome. I know I was just tested Saturday for Cushing's Syndrome. My endocrinologist seemed to assume I had Hashimoto's because it causes most hypothyroidism, but this pituitary stuff can cause it, too. A friend with Turner's Syndrome thinks I sound like mosaic Turner's and I can relate to a lot I've read on it. Endocrinologists often test it/diagnose it, I guess. So eventually I'd like to see about that.

Tomorrow I'm calling the endocrinologist's office to see if I need a sooner MRI appointment than April 6th because she said "as soon as possible" and that is not very soon. I also have to call my psychiatrist, part of the same hospital and who recommended this endocrinologist, and tell him what's going on.
unico_love: (childlike empress)
"Unfortunately, because people on the spectrum experience and express empathy differently than neurotypical people, they have traditionally been viewed as lacking empathy and feelings for others. Recent research has not supported this idea, however. Researchers have divided empathy into cognitive empathy and emotional empathy. Cognitive empathy happens when you think about another person's feelings without necessarily feeling anything yourself. "The relatives of the deceased are sad," but you don't necessarily feel sad yourself. Through a purely intellectual exercise you have arrived at a correct answer. Emotional empathy happens when you not only correctly identify the other person's feeling but also feel some of the same emotion yourself. In the funeral example, you would be experiencing emotional empathy if you said to yourself, "I feel sad when I think about how sad these people are." Your sadness is coming not from the fact that you lost someone (you did not know the deceased) but from your empathy for the people who did lose someone.

Interestingly, some recent research has revealed that on tests of cognitive empathy people with ASDs tend to score lower (show less cognitive empathy) than neurotypicals. However, on tests of emotional empathy, people with ASDs scored higher, indicating that people on the spectrum actually feel more intense emotion in the face of the troubles or distress of another person(s). Some people on the spectrum report, in fact, that they get very anxious when someone else is in distress because they believe it is their responsibility to alleviate the other person's pain by fixing the problem. The pressure they put on themselves can get overwhelming if they don't know what to do to help."
-pg. 69, Living Well on the Spectrum, by Valerie Gaus

This is so true for me! I used to think I couldn't be autistic because I always felt so much emotional empathy. I do lack cognitive empathy often, though. Just seeing someone upset upsets me. And I always feel like I have to fix other people's problems so they can be happy. I don't doubt some autistics have trouble with both types of empathy (cognitive and emotional), but I think I've met more with extreme emotional empathy than lack of it.
unico_love: (crystal ball)
Click to view my Personality Profile page

Actually my strongest intelligence is visual, then verbal/linguistic, then spatial (or spatial even lower than 3rd):P I have some spatial difficulties, yet I'm strong visually, so the score for that is kind of misleading.
unico_love: (crystal ball)
There is something I have learned in Dialectical Behavior Therapy that is probably obvious to most other people, but it was a big revelation for me: We are not our emotions. We experience emotions, but we don't have to act on them -- we can even act opposite of them. We are not defined by our emotions and we are more than our emotions. I have always felt like my emotions were the best reflection of me and when I experienced negative emotions, other than perhaps compassionate sadness, I was a bad person. Likewise, we are not our thoughts. Our thoughts happen and have meaning, but they don't define us any more than our emotions do. Thoughts can change at any time. Like emotions, they pass. Our true self is more solid than our emotions or thoughts. We are something deeper than those things. When I feel despair I feel hopeless. I think that is the "real" me and allow it to define my life. My sense of self constantly changed depending on how my emotions changed. In some ways I have a well-defined sense of self, but in other ways I allow myself to be overwhelmed and control.ed by my emotions and, to a lesser extent, my thoughts. It's easier to like myself when I don't feel like my negative emotions or thoughts are the truest depiction of me. It's also easier for me to see I am still being honest and true to myself when deciding not to express or act on certain emotions. It also helps my relationships.
unico_love: (crystal ball)
From: http://www.tenthousandquestions.com/2010_03_01_archive.html
Think different
If you could upgrade your own brain like a computer, which would be a bigger help: more memory, or a faster thought processor? If you could add one premium package of software to gain a special skill, what might that software be called?

Since I often get racing thoughts I'm not sure if having a faster thought processor would be good... Though maybe I'd be able to drive if I could react quickly and I'd be able to confront people about things more immediately instead of letting a lot of time passing sometimes when someone is inappropriate. On the other hand, sometimes I jump and get really upset instead of thinking things through first. I used to have a great memory, but it's gone now (I think because of Zyprexa). So I will say more memory would be good so I wouldn't need to keep rechecking things and would remember the books I read and so on.

For a special skill I'd like to offset my sensitivity with a barrier that makes my moods and feelings not so easily influenced by the feelings and opinions of others. I would just happily ignore people who were unkind or rude. I could take the constructive criticism while not being upset by the insults or rudeness. I sometimes get a lot of anxiety over reading emails or talking with someone who is a bit judgmental or blunt. Though sometimes I'm blunt, so I don't get mad about people being blunt.


May. 12th, 2010 07:01 pm
unico_love: (crystal ball)
From: http://www.tenthousandquestions.com/2009_05_01_archive.html
How clear are your memories? Some people remember many instances from different periods in their life, while others only have a few stories from their past that they can remember in great detail. Are your memories vivid, or do you only still have the barest outlines of events that have occurred to you?

What is your earliest memory?

My memories of my more distant past are very vivid, as are some more recent memories, but Zyprexa (the medication I take for bipolar) seriously ruined my memory. I forget really important things or emotional things since going back on it in 2008, and I find my former almost-photographic memory very flawed now. My childhood memories are mostly still very vivid, including all kinds of sensory and visual memories that seem rather artistic and confusing to others probably if I could recreate them. I remember my second birthday (and my mother vomiting from morning sickness from my younger brother that day), but I also think I have some memories from even before then. That one was the easiest to confirm.
unico_love: (Usagi snowflakes)
Today my mother thought I'd become (hypo)manic again because I seemed very excited and happy for no apparent reason. I'd probably still be manic if I hadn't gone back on Zyprexa and just like when I was depressed it wasn't completely controlled by medication (at all), the mania is probably the same way and some of it probably seeps through. Sometimes I have really sudden ecstatic times where I feel one with the universe and I'm completely overwhelmed with joy but some of those times might be seizures. I have lots of blank out spells or times where I don't remember doing things that are also thought to possibly be seizures (one time leading me nearly to run my mother over with a car in the middle of the night, feeling numb, which is when I stopped being allowed to drive). All my life, though, I've been intensely emotional and often I've been unusually happy. Even when I had bad things going on in my life like horrible school and family experiences, the sensory experience of my surroundings and my inner life could lead me to be extremely happy. When I received the Sailor Moon cd in the mail that I ordered when I was 15 (I was obsessed with Sailor Moon) I just went nuts. Rocking and crying and gasping for air, unable to breathe I was so overwhelmed. I played the same song on repeat. I still do that and music sometimes gives me that response again by playing it over and over. Today I've listened to television show theme songs over and over and that is part of what lifted my mood so much. The two songs are the theme song to Blossom and the theme song to Brotherly Love, both starring Joey Lawrence. I also love the old television show Gimme a Break! which he was also in (and I like that theme song too!) I hope my good mood lasts.


unico_love: (Default)

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