unico_love: (sarah teddy bear)
Migraines confuse me. I never used to get headaches or migraines, but now I get them. I know I've had very classic/typical severe migraines at least a few times (they run in my family), but the rest of the time I am never really sure. Earlier this evening I started getting very confused and nonverbal, which simply happens sometimes, and I know I was getting overloaded sensory-wise by that point. It's just that sometimes these incidents, totally aside from potential overload, are accompanied by a great mental haze and I feel like I'm starting to go outside my body. At home when nothing really is happening, I am often barely aware of it. Today it started when I was outside the house, so it was easier for me to notice. Being back at home helped me become a bit less overloaded, but the haze was still there, and now it has descended into head-throbbing. I took some over-the-counter medication, so hopefully that will help.

Date: 2007-11-25 07:33 pm (UTC)From: [identity profile] cluelessinchi.livejournal.com
I had though had a seizure disorder. Since you are taking Keppra and are you still taking klononpin? I take both for a seizure disorder. Both are seizure medications.

Date: 2007-11-25 07:39 pm (UTC)From: [identity profile] unico-love.livejournal.com
Anticonvulsants make me feel better (less crazy, less confused), but only Keppra and tegretol (the others I tried I didn't notice a difference, good or bad). My psychiatrist thinks I could have a seizure disorder, but he's also considered that I could have a weird form of bipolar, and since I react well to anticonvulsants, he keeps me on these medications. Obviously someone could be bipolar and have a seizure disorder, but they don't really feel confident at all about me (I think it's probably not Bipolar, just PTSD plus bad reactions to antidepressants, and I have never had a neurologist confirm a seizure disorder diagnosis yet).

Date: 2007-11-25 07:55 pm (UTC)From: [identity profile] cluelessinchi.livejournal.com
It took me a long time to get an accurate seizure disorder. I had to change docotors. I used to go to a famous doctor at Rush Pres St Lukes. I do not think he knew who I was. He mentioned that I had been on medications that I had never been on and diagnosed me with something that I never had. He proof was that this hospital had supposedly said this in a specific year. Actually that was the year that I had never even went to a doctor at that hospital. I bet he either read wrong chart or did not bother to read it at all. He was the specialist that invented the vagus implant thing for seizures. That is how I know so much about that. I also know several ex patients of his that are that way due to the fact they did not fit into his study so they decided to go some place else.
Trust in yourself. I have PTSD and seizures. They have tried to give me anti-depressants in the past for chronic pain issues. I become a zombie. I can not take them. Many people can not take anti-depressants. It is a common thread in the fibromyalgia communities.

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