unico_love: (childlike empress)
I'm feeling depressed about my life. I've accomplished so little in the past year other than stay alive. I've had symptom after symptom pop up. Abnormal test result followed by abnormal test result with no "real" answer. Nothing that connects the dots. When I get my dizzy spells, Michael worries what they mean. My brother and mother were hoping for a tumor in the pituitary gland. Hoping for a tumor... How low do you have to sink for that? My mentality is way off. I like the internet, but don't get enjoyment the way I used to out of in-person socializing. I don't feel like sending emails, though, either. I have nothing to say. I do nothing that would interest other people. My main enjoyment comes from helping other people and giving to other people. Hence, Project Snow makes me happy. Helping a loved one less fortunate who could benefit not only financially from me, but from my knowledge of things like make up and clothing, etc.

I'm reading a book right now and it says how everything is conscious. You can incarnate as literally anything and reincarnate as anything. It's like, I've thought this since I was 11 years old. I've prayed for the souls of living and non-living things for many, many years. People need a book on it? I get people have different beliefs, but this stuff is so ingrained in my heart. I'm feeling less desire to be partnered (who knows? Maybe that's just my lack of libido). I wouldn't mind becoming a nun, but I do not agree with the Catholic church. Maybe Buddhist? I am ready to take a vow of poverty and a vow of celibacy. I no longer feel fit for this world. At times that scares me and I think I'm going to die soon, having finished with this life. I feel like I've already lived through so much and learned so much from everything.

This sickness leaves me feeling haunted. My body is disjointed, not interacting properly with the environment. It is not running well. Neither is my mind, personality, or spirit. I am full of love for everyone. That is the one thing intact. I am bursting with love. I feel quite strange.
unico_love: (Default)
Today I went to my neurologist. They took me on-time, no wait at all. However, I was in the appointment for over an hour. They tried to get the labs from my endocrinologist. The nurse practitioner was a bit annoying... She insisted I had low cortisol because I had low cortisol from my March 2012 lab. I have high cortisol according to the past couple of months. She said I couldn't have a pituitary tumor because none showed on my summer 2012 MRI. I asked the endocrinologist the same question and she said pituitary gland tumors don't show on those kinds of MRI's -- she has to do a "different, deep pituitary MRI." The nurse practitioner asked if I drove (no), if I worked (no), if I cooked (no), and then she asked "Well, what do you do?" to which I didn't answer. Because I've had 3 seizures (1 tonic-clonic in my sleep, 2 complex-partial) seizures since late November, that means my seizures aren't completely controlled (though it's certainly good enough for me), so the nurse practitioner wanted to add Keppra to my Topamax. At least if they had to add a drug I'm glad it would be that one. I've been on it before for Bipolar and I don't get "Keppra rage." The doctor disagreed, though, and just increased me to the maximum amount of Topamax. He also tested my blood levels of Topamax today (which I did right after the appointment, in the hospital). I guess they were also concerned that I was having more seizures than I was aware of; it is possible, given I had several seizures on my 24 hour eeg and I wasn't aware of any of them.

The nurse practitioner *did* say that if I have a pituitary gland tumor, she can't guarantee that after it's treated my seizures and migraines will go away. That's okay, but the fact that *maybe* they will is encouraging! The fact that once the hypothetical tumor is treated I might be much more emotionally stable is even more encouraging and exciting! And even if they don't find a tumor, I will still be treated to lower my prolactin, which should greatly help me emotionally. As for the cortisol, that's still all up in the air. I still think they are testing me for Cushings and I don't know how long that will go on for or what will happen if I have it. That's scarier territory. If I have it it's in the early stages, whereas my prolactinoma (tumor secreting tons of prolactin) might have been around since puberty, just getting worse and worse, adding more and more symptoms. One of the major symptoms is irregular periods, and my periods have been rare from the start. My bipolar, anxiety, and seizures (not tonic-clonic) began around age 19. My libido and ability to orgasm ended in early 2005. Sex became more painful in late 2008. I gained weight suddenly late 2011 and my depression worsened then. I attempted suicide spring 2012. My daily migraines, fainting, tachycardia, tonic-clonic seizures, and weakness began spring 2012. I gained more weight suddenly in late summer/early fall 2012. Sex became even more painful. My vision sometimes started getting more blurry and I started getting headaches sometimes, though not migraines. I grew more weak in 2013, back like how I was in the summer. Since going off my birth control pills in mid-February to test my hormones I have not gone back on it and have not had my period. That was another dumb question asked in the neuro's office "Why aren't you getting your period?" I'd already told them my prolactin is sky-high. My body thinks it's majorly pregnant and/or nursing!

These are all my problems a prolactinoma might account for:
-Depression
-Anxiety
-Hostility
-Irritability
-Suicidality
-Irregular periods/rare periods/amenorrhea
-Infertility (though I want to keep that! No babies for me, thanks!)
-Anorgasmia
-No libido
-Vaginal dryness
-Painful sex
-Vision problems
-Migraines
-Headaches, in general
-Hot flashes
-Cold sweats
-Seizures
-Memory problems
-Bad decision making
-Over-sensitivity
-Physical weakness
-Needing 12+ hours of sleep a day
-Fatigue
-Fainting
-Collapsing
-Dizziness
-Nausea attacks
-Weight gain
-Loss of body hair
-Joint pain, bone pain, and muscle pain
-Hypothyroidism

The one symptom I *don't* have, that my endocrinologist was shocked at, given my prolactin levels, was lactation. I have never lactated, which is partly why I was so shocked to find out my prolactin was so high and wreaking havoc on my mind and body. I remember getting the test order and seeing prolactin on it and thinking "Prolactin? Why is she testing *that?* This is dumb."

So any or all of these things might get better with my prolactin levels controlled! For all I know, I'm not even bipolar! I was stable as a rock, just very sensitive, until I hit 19 and everything fell to pieces!



-
unico_love: (Delight)
Today was a better day than yesterday, at least. Michael missed his teaching at church and we both slept in. Cory was unable to come over, which was fine. Michael and I went to the free gem and mineral show at the Dupage Fairgrounds in Wheaton. Michael bought 3 carved stone animals -- a bear, a rabbit, and a cat. I bought a gorilla for Cory. I also bought an aventurine for myself, since they should bring good luck, and green moss agate earrings for Izzy. While I was flipping through the pendants on index cards, the first one I stopped at was labradorite -- the bracelet I'd been hoping to buy next month, probably as my last bracelet for awhile. Then I recently had been backing out of it, due to expenses as of late, but now I am more sure I should buy it if I can. Labradorite helps with intuition, seeing past illusions, and is associated with the brain (close to the pituitary gland -- where I'm having problems). Even if it doesn't help on a physical level, it's symbolic.

Then we went to the pet shop for cat food and we went to Aldi for human food. I skipped my shower tonight because my stomach is really bothering me. I keep trying to find information about hyperprolactanaemia, but most of the information is on Trying To Conceive messageboards. I want a board for people that is I Hope The Treatment Makes Me Infertile and Sterile. Also I want to get tested for Hashimoto's and mosaic Turner's Syndrome. I know I was just tested Saturday for Cushing's Syndrome. My endocrinologist seemed to assume I had Hashimoto's because it causes most hypothyroidism, but this pituitary stuff can cause it, too. A friend with Turner's Syndrome thinks I sound like mosaic Turner's and I can relate to a lot I've read on it. Endocrinologists often test it/diagnose it, I guess. So eventually I'd like to see about that.

Tomorrow I'm calling the endocrinologist's office to see if I need a sooner MRI appointment than April 6th because she said "as soon as possible" and that is not very soon. I also have to call my psychiatrist, part of the same hospital and who recommended this endocrinologist, and tell him what's going on.
unico_love: (Amalthea)
There is nothing that applies totally to one sex and not another, so while there are many things I do not understand about people, there isn't anything specific to only males I don't understand. One thing often attributed to males (but also found in females) is the ability to treat sex separate from emotions and just seeing it as fun without any deeper meaning.

365 Day Meme )
unico_love: (Cat mask)
I think same-sex marriage should be legal and same-sex relationships should be given the same rights and benefits of opposite-sex relationships and marriages. I don't see why one's sex should have any bearing on these issues.


30 Day Meme )

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